The Tuberculosis Specimen

5.1.4: A Final Plea

Introduction

Specimen Studies
0.1.1 | 0.1.2 | 0.1.3 | 0.1.4 | 0.1.5
Methods
0.2.1 | 0.2.2
The Structure of this Dissertation
0.3.1

Tuberculosis' Visual Culture

Visual Practices in Medical Culture
1.1.1 | 1.1.2 | 1.1.3
Seeing and Settling in the Sanatorium Movement
1.2.1 | 1.2.2 | 1.2.3 | 1.2.4 | 1.2.5
Teaching Public Health
1.3.1 | 1.3.2 | 1.3.3 | 1.3.4 | 1.3.5
Representing Doctors in Tuberculous Contexts
1.4.1 | 1.4.2

Using Human Specimens in the Study of Tuberculosis

Seeing Disease in Methyl Violet
2.1.1 | 2.1.2 | 2.1.3 | 2.1.4
Case Histories
2.2.1 | 2.2.2 | 2.2.3 | 2.2.4
Visceral Processes
2.3.1 | 2.3.2
Relation
2.4.1 | 2.4.2 | 2.4.3

Arts-Based Inquiry

Introduction
3.1.1 | 3.1.2 | 3.1.3 | 3.1.4
Terminal Imaginaries & Tuberculous Imaginaries
3.2.1 | 3.2.2 | 3.2.3 | 3.2.4 | 3.2.5 | 3.2.6
Dermographic Opacities
3.3.1 | 3.3.2 | 3.3.3 | 3.3.4
Tactical Pretensions
3.4.1 | 3.4.2 | 3.4.3

Designing Opacity

A Shift towards the Anticolonial
4.1.1 | 4.1.2 | 4.1.3 | 4.1.4
Refusals and Opacities
4.2.1 | 4.2.2 | 4.2.3 | 4.2.4
Digital and Ethical Workflows
4.3.1 | 4.3.2 | 4.3.3 | 4.3.4 | 4.3.5
Conclusion
4.4.1

Coda

Prometheus Undone
5.1.1 | 5.1.2 | 5.1.3 | 5.1.4

Appendix

The Tuberculosis Corpus
X.1.1 | X.1.2 | X.1.3
Web Design
X.2.1 | X.2.2 | X.2.3 | X.2.4
Installation Materials
X.3.1 | X.3.2 | X.3.3

Index

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As I conclude this project, I do not want to make a claim that all knowledge is useless, or that research should not be done. Knowledge work should continue; after all, that is why I have committed to this labor. I hope my work is valuable to someone for their own thinking.

What I am saying is that the ideological and epistemic system within which knowledge is made needs to be dramatically reassessed. For me, that reassessment comes from the context of ethics, and specifically an ethics that is in dialogue with scholars who come from communities that would have been considered a subject or object in previous decades. This kind of ethics is embedded, contingent, and imperfect.1

One of the things that I witness when talking with scholars about ethics, is that they tend to think of it in terms of a check list—‘I can get institutional review board (IRB) approval, and then I do not have to worry about any harms.’ Ethics, for these scholars, is a hoop to jump through, not a relationship to their research interlocutor, subject, or object. In this context, should the proper forms be filled out, should the proper precautions be in place, then anything that the researcher does is deemed ethical. This kind of approach is the lowest bar: a necessary step, especially because of what can happen if informed consent is ignored, but one in which harm is still possible.

Research ethics are about the relationship between a researcher, their interlocutors, subjects, and objects. As researchers, we are obligated to care for them,2 and often caring for someone or something means keeping their secrets.3 Édouard Glissant’s concept of opacity was argued in terms of the individual: someone could refuse inclusion into a totalitarian knowledge system, and refuse the ways those systems reduce, define, and describe their subjects (4.2.3).4 What I would like to challenge academics to take on is an ethics of refusal. At small scales this can incorporate refusal as a means to deny access to individual, communal, or sacred information that has been shared with scholars.5 Community-based and public humanities researchers have shown how knowledge workers engaging with communities can assist those groups.6 Refusal is a necessary tool in gaining and maintaining trust in those communities.7

On a larger scale, I want to imagine refusal as a means to short-circuit the capitalistic ideologies which are maintained in our academic systems (5.1.3). After watching most of my colleagues graduate and flounder on the academic job market, after watching Indiana University’s (IU) Media School—formed under a guise of cross disciplinary conversation—fight amongst itself regarding supreme epistemic authority, and after watching IU dismantle the Institute for Digital Arts and Humanities (IDAH) and the Center for Research on Race, Ethnicity, and Society (CRRES), I cannot say I have any love for the system in which I write. Moreover, at least in regard to IDAH and CRRES’ stellar record of publications, speakers, graduate students, and impact on the university’s research community in spite of their minuscule budgets, I doubt as to whether the scale of research has anything to do with who gets funding, what organizations get to exist, and who gets to be employable in the academy.

On this larger scale, refusal is only possible should it be accepted within the established tenure and promotion guidelines. Refusal in these guidelines would reward less research, done with kindness and obligation to one’s research interlocutors. It is only possible should those hiring new faculty be willing to fight for junior scholar’s ability to do careful, conscientious research. It is only possible if as a coalition, we scholars can admit to the ideologies which are driving our institutions toward the impossibility of infinite growth—more students, more buildings, more grant funding, more campuses, more publications. Even then, faculty voices only speak so loudly, especially when a university’s administration ignores every note, plea, or comment directed by any faculty governing body.

Frankly, I am not in a place to refuse anything, because I have no long-term future in the academic system. I am one of hundreds of scholars who is hungrily reaching for the promise of a tenure track line, and who will, most likely, give up in a year or two after dozens of failed applications. The system will refuse me.

Refusal is antithetical to our current academic system, but it is not antagonistic to knowledge production in general. My critiques of western epistemics throughout this dissertation have been around the value systems which are used to produce cultural, epistemic, and economic power. Knowledge is not Knowledge, but a fragmented collection of knowledges.8 The science that drove anatomy in the nineteenth century is methodologically and epistemically distinct from the science that drove pathology, germ theory, and public health in the same period.9 Many knowledges are possible, including ones tempered with refusal, obligation, and care.

What I call for is a refusal to willingly produce into a system that will devour anyone and everyone for its own expansion, for its own benefit, all the while chewing up the people within—researchers, students, subjects. That academy has no future. At present, I doubt any other version of the academy is possible at all.

  1. Liboiron, Max, Emily Simmonds, Edward Allen, Emily Wells, Jessica Melvin, Alex Zahara, Charles Mather, and All Our Teachers. “Doing Ethics with Cod.” In Making & Doing: Activating STS through Knowledge Expression and Travel, edited by Gary Lee Downey and Teun Zuiderent-Jerak, 137–53. Cambridge: The MIT Press, 2021. 

  2. TallBear, Kim. “Standing With and Speaking as Faith: A Feminist-Indigenous Approach to Inquiry.” Journal of Research Practice 10, no. 2 (2014). 

  3. Liboiron, Max. Pollution Is Colonialism. Durham & London: Duke University Press, 2021. 

  4. Glissant, Édouard. Poetics of Relation. Translated by Betsy Wing. Ann Arbor: University of Michigan Press, 1997. 

  5. Simpson, Audra. “On Ethnographic Refusal: Indigeneity, ‘Voice’ and Colonial Citizenship.” Junctures 9 (2007): 67–80; Liboiron, Max. Pollution is Colonialism. 

  6. Aguayo, Angelica J. “Spotlight: Marisa Hicks-Alcaraz.” Journal of Cinema and Media Studies 63, no. 1 (2023): 5–9; Hicks-Alcaraz, Marisa. “Regenerative Archives: Power, Solidarity, and Affectivity in Community-University Partnerships.” March 21, 2023. https://scholarworks.iu.edu/dspace/handle/2022/27448; Liboiron, Max, Alex Zahara, and Ignace Schoot. “Community Peer Review: A Method to Bring Consent and Self-Determination into the Sciences.” Preprints, 2018; Monteiro, Lyra. “Open Access Violence: Legacies of White Supremacist Data Making at the Penn Museum, from the Morton Cranial Collection to the MOVE Remains.” International Journal of Cultural Property 30 (2023): 105–37; Sutton, Jazma, and Kalani Craig. “Reaping the Harvest: Descendant Archival Practice to Foster Sustainable Digital Archives for Rural Black Women.” Digital Humanities Quarterly 16, no. 3 (2022). 

  7. Liboiron, Max. Pollution is Colonialism

  8. I should also say that non-scientific knowledges, especially Indigenous knowledges, have been the prime target for havesting claims for centuries. 

  9. I am paraphrasing a science and technology studies claim that there are multiple scientific methods.

    Shapin, Steven. Never Pure: Historical Studies of Science as If It Was Produced by People with Bodies, Situated in Time, Space, Culture, and Society, and Struggling for Credibility and Authority. Baltimore, Md: Johns Hopkins University Press, 2010. 


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